Table 1 Demographic characteristics of study participants
Participant ID | Mothers | Children | |||||||
|---|---|---|---|---|---|---|---|---|---|
Age | Stay-at-home | Age | Sex | Disability type | Underlying causes | Need for assistance in daily living activities (1 = bathing, 2 = dressing, 3 = transferring, 4 = toileting, 5 = eating | Siblings | ||
FG 1-1 | 45–60 | yes | 21 | M | Brain disorder | Birth defect (craniosynostosis) | 1,2,3,4,5 | 2 Sisters | |
FG 1-2 | yes | 19 | F | Brain disorder | Genetic disorder (Angelman syndrome) | 1,2,3,4,5 | 1 Brother | ||
FG 1-3 | yes | 18 | M | Brain disorder | Brain injury (onset:6 yrs) | 1,2,3,4,5 | 1 Sister | ||
FG 1-4 | yes | 22 | F | Brain disorder | Urea cycle disorder | 1,2,3,4,5 | 1 Sister | ||
FG 2-1 | yes | 19 | M | Brain disorder | Premature birth | 1,2,3,4,5 | 2 Sisters | ||
FG 2-2 | yes | 19 | M | Brain disorder | Birth asphyxia | 1,2,3,4,5 | 2 Sisters | ||
FG 2-3 | yes | 19 | F | Brain disorder | Birth asphyxia | 1,2,3,4,5 | 1 Brother | ||
FG 2-4 | yes | 20 | F | Brain disorder | Birth asphyxia | 1,2,3,4,5 | None | ||
Int 1 | 48 | no | 20 | F | Brain disorder | Genetic disorder (Angelman syndrome) | 1,2,3,4,5 | 1 Sister, 1 brother | |
Int 2 | 50 | yes | 27 | M | Brain disorder | Cerebral palsy | 1,2,3,4,5 | 1 Sister | |
Int 3 | 52 | yes | 27 | M | Developmental disability | Autism | 1 | 1 Brother | |
Int 4 | 48 | yes | 21 | M | Developmental disability | Autism | 1 | 1 Sister | |
Int 5 | 59 | no | 25 | M | Developmental disability | Autism | 1 | 1 Brother | |
Int 6 | 47 | yes | 18 | F | Brain disorder | Birth asphyxia | 1,2,3,4,5 | None | |